Ethan: How Type One REALLY is

Today is our 7 year diaversary. My 13 year old wrote this....makes my heart proud and break at the same time. ❤️💔
How long is 7 years? For me, that's half of my entire life. 7 years ago, I was in first grade. On this day, 7 years ago, I was diagnosed with Type One Diabetes.

diagnosis Type 1 diabetes

What is it like living with Type One Diabetes?

Imagine, living a life with a huge weight on your back; it's almost like you never really get to live. You're constantly in a state of fear because you never know what could really happen. You don't know if your blood sugar will manage through the night. You don't know if you'll wake up in the morning. Isn't that terrifying? You hear all these jokes about diabetes and suddenly you feel self conscious about yourself. You pretend you don't care, but you really do. All you can possibly want to do is cry. It makes you think, why do people make jokes about diabetes? You NEVER hear jokes about cancer and other diseases do you? So why diabetes?!

It's a life where you have to depend on a bottle of insulin to survive!! You can't always do what your friends do, so you feel embarrassed. When most people hear that you have diabetes, they don't feel sorry for you. They immediately say, "Oh you have diabetes but you're not fat?" or "Did you get it from eating too much sugar and food and not eating healthy?" If you take one look at me, you should probably take that back. I'm super skinny. 😂What really happens is that my pancreas got attacked by white blood cells and cannot produce insulin. Not everybody understands that this disease can KILL you.

I promise you, almost every diabetic thinks the same as I do: I don't hate diabetes for the finger pricks and injections; they aren't nice but they are bearable.

I HATE diabetes for taking away my childhood.

I hate it for making it almost impossible to be spontaneous! I hate it for making me scared. It has made me so much stronger, more mature, and responsible. But it has also made me exhausted and anxious. I hate it for never giving me a break. For being constant and relentless. Or for throwing everything back into my face when I have worked so hard. I've put in SO much effort. I hate it for bringing me down and knocking me until I have nothing left. For making me as strong as I can be and then breaking me down into a puddle of tears and frustration.

family with diabetes

But hopefully diabetes isn't a life long battle, and hopefully someday soon they find a cure because none of us asked for this disease. And even though we can handle the pain and struggle everyday, we don't deserve too. I hope one day I won't have to explain how hard life with type one diabetes is, but instead how amazing life WITHOUT type one diabetes is.

teenagers dealing with Type 1 diabetes

If you want to share your story, email us at

November 10th.jpg